Monday, November 7, 2011
URGENT !! ..Vascular Ehlers Danlos Syndrome with Cervical Cancer !!!!?
I SUFFER FROM VASCULAR EHLERS DANLOS SYNDROME AND ALSO HYPERMOBILE EDS...I am 43 and already extremely ill. I recently finally have been also diagnosed with early menopause and on top of all my many meds i have had no choice but to start HRT also.....I was just desperate. If that wasn't enough i have just been told that i have been found to have cervical cancer which has appearred rapidly. I am obviously deeply shocked and upset but know that i have to do the work as my Docs here simpy know nothing about EDS full stop and even though they can see how dreadfully immobile I am, and have also had a ruptured aorta and approx 7 other 'critical episodes'. I feel it's a miracle i am here at all but NEVER imagined the combination of cervical cancer with the EDS.... am so very scared of all the treatments and this is very urgent but feel my med team here keep making bad calls so would deeply appreciate ANY advice. Thank you so so much
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